For My Dad, Al

Tuesday, November 26, 2019






As most of you know Thanksgiving is my favorite holiday!  It makes me sad that stores and people skip right over this wonderful holiday. Stop with the Christmas decorations, people, and enjoy your Thanksgiving Holiday for a hot minute. We get to eat, hang with friends and family, play games and just fill that cup up with all things gratitude.

This Thanksgiving Day it will be exactly five months since my dad passed away.  My dad didn’t want a funeral. After his death, we had to figure out unfinished business.  Unfortunately, due to differing opinions and unforeseen circumstances, this business took a lot longer than it should have.  For me, I feel like I wasn’t able to start my own grieving process for this wonderful man I call DAD!  So, I dedicate this Thanksgiving to my Dad, Al!

I want to share with my kids what an amazing “Papa” they had.  I hope the rest of you enjoy learning about a man that came from an era that is quickly leaving this earth.

My dad was born on January 25, 1926. His parents were German and settled in Indiana as farmers. He was the oldest of five kids. His parents didn’t express love, his father was an alcoholic and he abused my dad when he was young. Once his father stopped drinking later in life, my dad said he was a completely different person. I never met my grandparents but they did something right cause my dad was a great man. 


He was the Valedictorian of his high school class. He played both baseball and basketball. He went into the ROTC program in college, but still played baseball. One year, he was invited to participate in the Dodgers’ spring training camp, but he had to go to war. Out of all of his 9 kids, I was definitely his baseball/softball buddy.

He met my mom in Albuquerque, New Mexico. After the first date, he knew he wanted to marry her, so on the 2nd date, he proposed. He told me that they prayed together about it and were married 6 weeks later. They were married for 54 years, until my mother passed almost 17 years ago.  I know they are back together, enjoying eternity with each other.

When my dad proposed, my mom said to my dad, “But I won’t ever be able to have children.”  My dad responded with, “if I don’t have children with you, I will never have children anyway.  We will adopt!”  Not too many people I know would do that.  Not only did they adopt, they adopted 9 children and tried to adopt 12 others. Our home was always full, a lot of times with friends who needed a place to stay.


My dad often told me or anyone who would listen that my mom found my siblings but he found and fought for me.  His cross-eyed, chubby, curly-haired, Polish baby girl.  I was defiantly a daddy’s girl. Not just because of this but because we had so much in common.  I was in awe of him and loved learning any lesson he had to teach me.  I constantly pestered him to take me to work, Dodger games, or coach my softball team.

My parents grew up during the Great Depression and didn’t have much.  So, when they had their own family they spoiled us a wee bit.  My dad worked harder than any person I have ever known.  I don’t think he ever slept more than 4 hours a night.  He worked as an L.A. Firefighter, while running his own successful business. He multi-tasked on steroids when multi-tasking wasn’t even a word. I think he may have invented it. Haha!

My parents were converts to The Church of Jesus Christ of Latter Day Saints before I was born.  My dad, no matter how busy he was, always made time to serve in church.  One of my dad’s friends once said, “Every ward needs an Al Miller!” (a ward is a congregation in our church). He was a faithful man and I appreciate the example of dedication, faith and Christ-like attributes he tried to emulate.


No matter the heartache, trials, pain or anything else he went through, he was joyful, kind and loving.  No matter how rotten I was as a teenager, no matter how many stupid things I did, I always knew he loved me.  When I was a young, single and scared pregnant woman, I went into my dad’s office, sat down and said, “Dad, I need to talk to you.”  I proceeded to start crying uncontrollably. I was hysterical and I am not quite sure how he could understand me.  I blurted out that I was pregnant. I knew I was at low point in my life and could barely take care of myself, let alone a baby. My dad was perfect.  He said calmly and with a smile on his face, “You need to send that baby nothing but good vibes. That baby feels everything you feel, so stop crying.” He gave me a hug, and told me to “go take a nap because your body needs energy for that baby.”  He told me not to worry, that he would tell my mom and he would take care of me and my baby no matter what. I could go on and on about what he did for me throughout my pregnancy but I will just say what he did in that moment was exactly what I needed and was a pivotal turning point in my life.


As you all can see from his pictures, my dad was mighty handsome!  He did a few commercials when his children were young.  He always looked younger than his age until the day he died.  He was uber smart and it fascinated me the way his brain worked.  He could outsell anyone on the planet. My Aunt Barbara told me recently that he sold enough trinkets at a fair in just a few days to put a down payment on a home.  He loved people and people loved him.  He worked out, took his vitamins and never ever got sick, even though he only slept about 4 hours a night and worked usually 16 hours a day.  I think I need a nap just writing about it.

He loved me like crazy, always told me so.  He taught me about numbers and finances when I was eight and never made me feel I was too young to learn the bookkeeping side of his business.  Probably boring to some but I loved it.  He loved playing cards and started playing with me around age 4.  We spent many nights just the two of us playing card games.  When I was pregnant with Chase my sister Brigitte, and my brother in law would come over nightly and the four of us would play games like Eucher and Hearts.  We continued this until just a few years before my dad passed.  This simple thing helped me through a scary time and always kept me calm.

My mom had such a strong bond with all her children.  She always made everyone feel extra special, including me.  My dad though was my idol.  He taught me so much and we shared a special bond.  I am a daddy’s girl and although he is not with me physically he is such a part of who I am that his presence is a constant.  I miss hearing his laugh, I miss hearing him say how much he loves me and how proud he is of me. I miss hearing him telling me how good it felt when I rubbed his neck the last couple years of his life.  I miss playing cards with him.  I really just miss him but I know that he is waiting for me with open arms with a big smile on his face constantly sending me good vibes!!



Babies + Blankets

Monday, May 27, 2019




*Note from McKenna: If there's ever a good reason to fall off the face of the blogosphere, it's faces like this! Our baby girl, Charlie, was born on Mar 31st and we have been eating up every moment with her. Mandy and my Dad were just out visiting for her blessing which was such a wonderful time. Happy to be back to documenting on this here blog though and grateful for everyone who reads!

This post has been weeks in the making and there has just been so much going on in life. A few weeks back I had one incredibly rough chemo week and those weeks are just awful- but that's ok! For every hard week there's a tender moment, like spending time with my Dane in bed while I was just so sick and shaking I couldn't possibly get up.
When we're not consumed by cancer or chemo we take every opportunity to be on the boat and I just couldn't have dreamed of a better time for us to come back into the boat life. It's so easy to put things off and decide not to do big things when your health is a big fat question mark, but I'm glad that we haven't done that. Don't wait! Live life and do the things in your power to remind yourself that life is sweet.






In case you don't know me well, here's something about me: as far as typical 'talent' goes, I don't have much. I don't sing or play an instrument, I don't bake or sew or do things worthy of much note. But one thing about me that I would possibly consider a talent is surrounding myself with people who do do incredible things. My friend Tiffany and her daughter, Hannah are the owners and operators of a blog and crochet business called Daisy Farm Crafts and they are fabulous! When I first started doing treatments Tiffany made me my beautiful blue heart blanket that kept me warm and comfortable during a time of a lot of physical discomfort and uncertainty. Tiffany has faced her own battle with cancer as well, finding out she had uterine cancer on the same day I shared that my colon cancer had returned. I'm so glad to say that she is healthy and in remission and killing it in the crochet business! I've bought several of her blankets for our grandkids to use, and she has promised that no matter what happens in the future my grandkids and the one's who've not yet arrived will always have a blanket from her. What an incredible gift.




Her daughter Annie is an inspiration to me and someone I grew close to when she was facing her own health struggles. When she was younger she struggled with having epileptic seizures that made it very difficult to do daily tasks. She had to have surgery on her brain and while she was recovering I'd go over to their house and play cards with her. Annie has grown up and gone on to receiving scholarships through golf and is flourishing. Such an example to me of persevering through adversity! Their family has a special place in my heart.

Scott and I are currently driving to meet with a Dr. Patel at UCSD to talk about a clinical trial that involves stem cells and immunotherapy. Stem cells are such an incredible innovation in the medical world right now, providing answers to diseases like macular degeneration (causing blindness) and so many other things that were previously given no options. Scott suffered from pain in his foot cause by a motorcycle accident as a teenager, and injecting stem cells into his foot resulted in miraculous results for his pain. But, as always with cancer, the road is not straight and I have to weigh out this treatment and its requirements against my current treatment. Do I have to move to San Diego for the treatment? Will it rule out other forms of treatment that have previously been successful? I would love a clear yes/no answer for once but that is not the nature of the cancer beast. But we are confident, and as always- we move forward.

As we drive to CA today, on Memorial Day, my thoughts turn to our kids, my son who served in the military and is now a police officer, our grandkids, my parents and all the people who've touched our lives and protected us through their service. Memorial Day is about legacy and serving each other as a people and a community. I'm glad to share just a tiny bit of my legacy with you through these words we write and this journey I'm on, thanks so much for walking it with me.

xo

Mandy





Taking Heart- The Good and the Not-So-Great

Tuesday, March 26, 2019

Scott and I were talking with his daughter, McKenna the other night and going over the frustration of Scott dealing with Google and his recently lost phone. Essentially we seem to be at a roadblock because to get his new phone he needs to go through a verification process- this process includes sending a code to his device that he no longer has. Which puts him and Google at an impasse of sorts. These kind of problems happen to be some of Scott's very least favorites in life. Anyway, we joked about 'first world problems' and how these things are frustrating but not at all like dealing with life or death issues. To which we all had to pause and recognize that that's also a current reality on our roster of 'problems'.  
2019 has had a funny way of showing us to be grateful for the time when it was just cancer and chemo treatments that we had to deal with- how's that for ironic? I tell you, I've had so many moments this year where I couldn't help but think "Am I actually being punk'd right now? Because in no way can this be happening to us." Problem after problem has popped up just when we were thinking to ourselves, 'Well at least nothing else can go wrong!' McKenna pointed out that although these 'first world problems' are little in the spectrum of life they can still be so, so draining emotionally. First world problems are the type of problems that often spring up as three new, separate problems with each step you take towards the solution- testing not only your attitude but your endurance. And right now, we're simply trying to endure it well. All of it. 
For the sake of documentation, we decided to write out 10 things of both positive and negative natures that have occurred since 2019 with a resolve to keep moving forward. And laugh as much as possible. 


1. Mourning Scott's wonderful mother, Ilene

Although Scott's mother's health had been declining, it still came as a slight shock to us when she passed. The ensuing roller coaster of emotions is still ongoing, and we miss Ilene and her presence so much. 

2. Stay in the ER

Coming home from traveling to California only to wind up with one of the worst health scares and consequential stays in the ER was just terrible.  Three days in the ER on a gurney was exactly the opposite of what my body needed and wanted after losing so much strength from surgery and I am still recovering from the whole experience. 

3. Scan that revealed the cancer is back (and worse than it's ever been)

Finding out that the liver resection was not as successful as we'd hoped and that my cancer had already returned was just a kick to my tumor-filled gut. We really struggled with this news and the reversal of hope we'd experienced coming into the new year.

4. Gas Leak

This is when I started to believe that being punk'd could really be an option. We had a gas leak underground, causing the Gas Co. to evacuate us- the day before our trip to CA to see my doctor! I was scrambling to get packed in case we'd be out for a long time, but luckily it was only a couple of hours. 

5. Sickness Before & During Trip to CA

I was nervous when I started to feel sick soon after the gas leak that it was caused by some sort of poisoning because I felt terrible. And I had a road trip the next day. I was up sick all night and spent most of the car ride laying in the back seat of the truck, hoping I'd make it to CA intact. I was sick all the next night as well, but confident it wasn't due to the gas because I always felt much much better as soon as I'd emptied out my stomach!  Unfortunately I would be required to stay on a liquid diet for awhile.  

6. Mussels Massacre in My Kitchen 

Note to self- do NOT impulse buy a giant, Costco sized bag of mussels! This seemed like such a well-deserved indulgence considering Scott and I both love seafood and cook it on a regular basis. I brought the mussels home and proceeded to soil my home with not one, but two batches of terrible smelling mussels that I could not successfully cook. They smelled and tasted horrible and my kitchen floor was littered with the corpses of my failed mussel dinner attempt. 

7. Cystic Acne- Symptom from my Drug

This drug I'm on is said to be a wonder drug for my tumor DNA, but all I currently know of it for myself is the ensuing cystic acne that has shown up all over my chest, head back and face. I knew I'd be getting acne as a symptom but I did not realize how painful it would be! Like little volcanoes all over my skin. 

8. Attempted Identity Theft

Someone decided that my life is just the envy of all and had my address changed with my credit card company and tried to hack into my PayPal account! Luckily it was blocked but it's just laughable- move along, friend. This is not the party to be crashing. 

9. Scott's Credit Card Used to Purchase upward of $7,900 in flights

We got a call from United asking if Scott was buying flights to Rio and all sorts of other places... No, no we do not have plans to go to Rio, thanks very much! This person was booking so many flights that was charging thousands of dollars to Scott's business card! Luckily United caught it and reached out to us, so no harm done. 

10. Busted Pool + Hot Tub Heater + Torn Up Back Yard

This one is sort of feeble in comparison to some of the other problems and situations we have going on, but how much does it stink when things break, you get them fixed, and then they break again? Not to mention when those things are relatively expensive! Again, first world problems because how lucky are we to have jacuzzi and pool to fix in the first place? 
But on the other hand how little time and energy do we currently have to deal with a repeated problem like this? 
Can everything just stay fixed for a minute while I use it myself? 


Moving on to the many wonderful things that continuously remind Scott and me of our blessings. They are constant and truly sustain us when it feels like we're about to break


1. Boat Day with the Boys

Scott bought a boat this year, which has been a dream of his since he sold his last one decades ago, and we took it out for a day with the boys. The water was cold and I had to stay totally sun-covered due to my acne but it still managed to be a wonderful and much-needed escape from all of the stress and worry. And broken stuff. 

2. Having my Friend Carmen and her family come stay with us for a night- 3 liver resections 50+ chemo treatments and killing it. This is Carmen! Seeing how good she is doing was a true tender mercy at the exact right moment.  Her husband Carl knows the DNA stuff and after going over my tumor profile he explained how much Carmen and I have in common by way of DNA.  Keep killing it Carmen cause I'm following in your footsteps.

3. Celebrating Scott's wonderful mother's life

Of course, it is sad to be without Ilene, but it was so fortifying and wonderful getting together with Scott's family to remember and celebrate her. We are so happy to have her forever. 

4. Photos with Nicole

My good friend Nicole is an amazingly talented photographer who's taken photos of me before with my close friends. She reached out and offered to take photos with me and the boys- a gift I simply treasure. It's so great having these beautiful photos too because cancer has many faces, and they're all real. One face is the one of me, surrounded and lifted by my boys with a healthy smattering of makeup to face the world. The other, also very real face is the makeup-less, acne covered me. Stripped down and worn out from the effort and exhaustion. Both are real, both are me. 

5. Planning more boat trips with my kids and Scott kids in the summer!

We can't wait to take the boys to the river in June and Scott's kids to Bear Lake in July! I'm hoping the acne settles (much sooner) and we can look forward to plenty of sunshine and boat time with our favorite people. 

6. The drug I'm on worked great for my friend Carmen.  She told me it was what got her to NED (no evidence of disease) which isn't heard of often in the colon cancer world. Apparently the nasty case of acne is a good sign it is working.

7. Scott bursting out in laughter when the gas leak literally made us homeless the night before our trip to CA to see Dr. Lenz. 

I mean we actually had nowhere to go! Sometimes laughing is ALL. YOU. CAN. DO. 

8. My continued increase in strength and healing of my incision.

One of the hardest parts of the last few weeks has been trying to regain my strength back from my resection surgery. I've just been so weak and having repeated sicknesses, hospital visits, road trips and other issues has presented quite the roadblock between me and full restoration but slowly and surely it's coming back to me! I feel a little bit stronger, a little more energized and my incision gets better all the time!

9. Greater appreciation for something simple and easy, like chemo! 

I so look forward to having a week of simple chemo now! How funny is that? Lately there's just been so much extra stuff that it's given me perspective of how great it can be to just have straight cancer and chemo on my schedule. Having cancer certainly separates me a few degrees from a clean bill of health, but seeing a time when I'm not recovering from surgery, throwing up my stomach lining, or dealing with cystic acne in ADDITION to chemo is heartening. 

10. All of my amazing friends, family, church members who have reached out and offered their strength as I've literally had almost none since February. 

How wonderful, wonderful, wonderful is it to have such extraordinary people in our lives. I continue to receive texts, phone calls, well-wishes and thoughtful gifts and goodies on my doorstep. These things may be coming to me via doorstep or phone, but they make it so much further, landing right by my heart and lifting me at every turn and misstep. 

Two quotes that stand out to me when it comes to life and the things we all experience are:

"The greater the struggle, the more glorious the triumph" - The Butterfly Circus 

"If for a while the harder you try, the harder it gets, take heart. So it has been with the best people who ever lived." - Jeffrey R. Holland

How true are these statements? And how easy is it to forget them when we're in the middle of our trials?  What are some of your 10 things that you appreciate right now? Chances are you couldn't have had some of those good 10 things without the bad as well! I don't necessarily always look for perspective when I'm right in the thick of it, but I'm certainly grateful for hindsight and for the down periods in between the difficult times that allow me time to reflect and build myself up better for the next thing! We all have the power to fortify ourselves against negativity and embrace each day with an enthusiastic "Come what may and love it!"

xo Mandy 





Relapse

Tuesday, February 26, 2019



















What a February. After having my spleen, gallbladder, some of my liver and a bunch of tumors blasted from my body in January, I can tell you that I was not really expecting the events of this month and specifically the last couple of weeks. December and January were filled with a lot of hope, and although that hope is still there, February, like winter, is a reminder that there are seasons to everything and that life doesn’t work according to your timing.


I’d like to start by talking about the trip to California we took to come together with Scott’s family and to remember his wonderful mom, Ilene Lawler Ellsworth. I’ve always said that I lucked out BIG TIME in the in-law department when I married Scott. His siblings are great people whom we get together with at least once a year, his step-Dad Tom is a tower of love and wisdom and his mom, Ilene, is a direct reflection of all the wonderful people she’s raised and called friends throughout her life (which is no small number considering she had 4 children of her own, and remarried into a family with 10 children!). Ilene was diagnosed with early onset Alzheimer's 18 years ago. She managed to stay active and mentally engaged with her career with Jafra Cosmetics, which she held for over 50 years, and a family of over 100+ individuals for an incredible amount of time, only really showing signs of her illness in the last 5-7 years or so. She passed peacefully in her sleep with her love, Tom, holding her hand. We love her and remember her.




Being with Scott’s kids was also a wonderful experience seeing as it’s difficult for all of them to come together from around the country. We love seeing their spouses and kids but it was special being able to come together with just them and spend time with one another.





The only con to the trip was the weather. Everywhere I went I was covered in layers with my little orange pillow in tow that I could clutch to my abdomen to keep my incision from surgery secure. I was only three weeks post surgery, so It was in pain a lot of the time and I was just too cold all of the time. As a result, 2 days after we got home I ended up taking a trip to the ER where they found I had a UTI, a sinus infection, the flu, and fluid around my liver. Not to mention the ER was just so busy, I spent nearly three days there on a gurney as there were no rooms or even beds available. They did test after test while my friends and family rotated shifts being with me. As always, they really stepped up to the plate and rallied for me. At one point I was so desperate for a room and a bed that I told them I was ready to go against medical advice so I could just go home. They told me a room was available and ended up transferring me to post-op... I don't mean to sound ungrateful but the only difference between post op and the ER gurney was that I exchanged my door for a curtain, meaning less privacy and it was filled with the noise of patients coming out of anesthesia or experiencing great pain. It was awful and I was mentally and physically exhausted. Luckily, my friend Chelsea happens to be the hospitalist there and she worked her but off to get through all the paperwork so that I could be released. I've never been so grateful for my bed (or good connections) in all my life!



Now for the hard part. One of the many tests they conducted while I was at the hospital was a CT Scan, which was sent to Dr. Genyk, my liver surgeon at USC. 
This last Friday I knew I would be receiving a call from him or his PA Kristen. Scott was in Malaysia en route to China at the time on a trip he'd already postponed due to my hospital visit. Friday night, I get the call and it's Kristen - who, by the way, is absolutely fabulous. She was calling me after she'd gotten off work which is typical of her considering she is always, always accessible. 

The first thing she said was, "Is your husband with you?"

My heart sank.

I told her he was in Malaysia but that my friend LeAnn was with me. She told me that I had relapsed and the cancer was back in my liver. So soon after my surgery. It was not the news we were hoping to hear.
On the phone, I tried my best to keep it together because Dane was sitting on the couch and was about to go out. I didn't want to upset him LeAnn could tell something was wrong, and as soon as Dane left I broke down in tears. She was up in action immediately calling friends and people who could come over and give me a Priesthood blessing. (A prayer for healing, and comfort given to a person) Since Scott was gone I had to call him and tell him the news while he was on the runway from Malaysia to China and ask if he could cut his postponed trip short to come home and be with me. He of course did. We have an appointment at USC on Monday with Dr. Lenz to figure out our next steps.

A bright light, in spite of the disappointment, has been the last few days and how I've been able to focus a lot of energy on my wellness. When you're doing chemo you're pretty limited in the things you can do to take care of yourself. Today I was able to get my teeth cleaned! Such a small, but wonderful thing to do as far as self-care goes. I'm grateful because I've had so many people come into my life who've supported me in the value of self-care and wellness- preparing your body and mind as much as possible for the fight of chemo and surgery. Doing things like reflexology, getting my vitamin drips, and working to maintain a constant positive attitude have made all the difference for me. So right now, I'm arming myself up and doing all the things I can before I enter into whatever the next stage of battle is. Immunotherapy, another round of chemo- whatever it is. As always, I am IMMENSELY grateful to all those in my life who come to my rescue. My husband, my boys, my friends and loved ones. Thank you for sitting with me physically and emotionally through this latest ride. At this point there's not much we can say except, let's see where this next chapter takes us :)